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Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw

Wednesday, January 28, 2015

Connor is 7 today!

Today is Connor's 7th Birthday!  I can't believe that we are here.  Birthdays are exciting but also bittersweet.  With each added year we are reminded of how we have limited time with Connor.  These events are always shadowed by the reminder of DMD's fatal progression.

However we are fortunate and thankful Connor is doing well physically and is even doing well in school despite the occasional hiccup due to Autism.  He has improved tremendously in the last year.  We are so proud of him!  He is able to communicate more and more about his wants and needs and meltdowns are becoming rarer.

Connor still LOVES EDM (Electronic Dance Music) and Steve Aoki has continued to be his favorite DJ.  While he's listening to other artists he's commenting "Steve will like this."  Thankfully Steve is a super nice guy!

Connor will be receiving his music experience from the High Hopes Foundation soon and we are so excited for him to be making his own CD.  We simply can't wait for such an incredible experience.

We are also under way for making plans for building his bedroom and are crossing our fingers we will "break ground" in the Spring.  It's super scary and exciting!


This is Connor enjoying a wonderful gift from Annie's Angels while listening to Martin Garrix's song "Animals".  Also a long time favorite song.

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