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Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw

Tuesday, November 29, 2016

Connor (and family) met Porter Robinson and got to stay for the show!!!!

We simply can't believe it!  Connor was able to meet Porter Robinson and stay for his show!

We had been in contact with his team and they agreed to Connor meeting Porter (and we brought the other kids along).  They offered for Connor to stay to watch the show!  Connor was so excited he cried that morning when it was time for school because he wanted to go "right now."  He made it through and off we were to Boston for dinner first then the show.

We got into Boston on a very rainy night.  We were late getting to Abby Lane but they were super super nice and held our table for us.

Thankfully Jon dropped us off so we could get out of the rain while he went and parked.  We would have gotten there a little earlier had Google Maps not had us walk around in circles.  We finally just asked someone where Abby Lane was and they helped get us in the right direction.

Keely enjoying her spaghetti (or pascetti as she says)

Us at Abby Lane
We had our delicious meal which the kids loved and we were off to the Orpheum Theater!

When we arrived we got our tickets and were brought to our seats.  Everyone there was so nice!  Connor was already bopping away to the DJs already playing.  Once we were settled it was time to meet Porter!
Connor and Porter

Porter was so nice and was genuinely touched by all the fanfare about him.  Each of the kids made something for Porter.  Connor made a card that said "Thank you for meeting me.  So excited for the show!"  Connor was so excited that Porter said he was talented.  "I'm talented!"

We gave Porter some Connor's Crusaders bracelets and he said that he and Hugo (Madeon) would wear them during the show.

We showed Porter the video of Connor and Liam doing their own version of Dance Dance Revolution and Connor declaring "I'm gonna win!"

Porter and all the kids

Porter and all the kids (you can see Keely's Rin Bow)
Connor had a little bit of time to ask Porter about some of his favorite things.

Porter's favorite colors:  pink (like Keely's bow) and light blue
Declan said black like his lego guy that he showed Porter.

Connor said his was green and purple.

Porter's favorite food:  pizza
(Liam high 5ed Porter over favorite food.)  Connor said pizza too.

Porter's favorite subject:  Science
Declan said "I love Science" and Connor said "Me too!"

When the show started, we could see the bracelets and Connor was so excited!  He loved it!!



The next morning (after Connor had slept in late) he asked for pizza for breakfast.  Sure thing Connor!