Info

Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw

Friday, September 25, 2015

Today is THE DAY!!

We have been waiting for this day for a long time and it's both exciting and terrifying!  We are breaking ground for creating Connor's bedroom (on the first floor).  We will see how far we get and crossing our fingers we are able to get to a point where it will survive the Winter.  All the kids are super excited at all the equipment and digging.  Especially Declan who just wants to jump in and help with his mini truck.  This morning Connor said he was excited because he'd be closer to the swing set.  LOL

This project is going to take a while and we have so many people to thank for getting us to this point I don't even know where to begin.  Please wish us luck for a smooth construction project.

All our love and thanks!

The Mullaly Family
Keely "helping"?


Wednesday, September 9, 2015

Connor met TIESTO!!!!

Connor got his High Hopes Foundation music experience!  

We were so thrilled that Tijs (pronounced Dice with a T) was able to meet all of us but especially Connor.  Connor was so quiet we think he was star struck!  Tijs was super nice and his team even asked us what Tijs could ask Connor to engage him (amazing!).  Not many people ask that so it meant the world to us!  Connor chatted a bit with Tijs and got the shirt he wore from his EDC Las Vegas show signed (gasp!) in front of him.  Connor loved it!  The next day we also got his headphones that Tijs signed from the show in Atlantic City!
Jon, Keely, Tijs, Connor, Kira, Declan and Liam (photo courtesy Jordan Loyd)

Keely, Declan, Tijs, Connor and Liam giving Tijs the card we made (photo courtesy Jordan Loyd)
Tijs and Connor (photo courtesy Jordan Loyd)
Tijs and Connor (photo courtesy Jordan Loyd)
We drove to Atlantic City where High Hopes paid for hotel rooms for us for 3 nights and spending money.  The kids were all super excited since this was the first real vacation we've been on.  Connor played his Tiesto play list almost the entire drive down.  

Look what Connor found!
Connor and all the kids were super
excited to stay in a hotel room!
We went to Storybook Land the next day for a few hours and then back to the hotel for dinner and bed.  The next morning was the day Connor had been waiting for (see photos above)!

Then after meeting Tijs we got ice cream and went to the beach.  :)

Now to just figure out a way for Connor to go to a concert or two before he's 21 . . .  :)