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Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw

Friday, March 4, 2016

Connor met Hardwell!!!!

We still can't believe it!!  Connor got to meet Hardwell!

We found out last week Connor would be able to meet Robbert (Hardwell's real name) AND go on the Tour Bus.  Sometimes we aren't sure how much Connor understands but he not only understood but he was telling everyone about and was very excited!

On the way in to meet Robbert, Connor was playing his Hardwell playlist the entire time.  We were there very early and we weren't sure how Connor would deal with waiting.  Typically it's a very difficult thing for him but he was amazing!  He didn't want to take a break or anything, he just wanted to listen to Hardwell.  :)





Any time there was a truck or an MBTA bus he kept asking if it was him!  This is when he saw the bus . . he almost hopped out in traffic!



When we got on the bus, Connor was in awe!  He couldn't get over how awesome the bus was.  Robbert even gave him a tour so he could check it out.

Connor talked about the songs he liked and gave everyone a Connor's Crusaders bracelet (which they all put on including Thomas Newson and Kill The Buzz (Adithya Nanuru)). They gave Connor an amazing poster that they all signed and Robbert signed Connor's "I Am Hardwell" DVD.  Connor shows Robbert his Hardwell braclet too!

We spent some time on questions he wanted to ask Robbert (he needed some reminders) but he kept asking about his dog, Jager.  Robbert was so nice!  He even FaceTimed with her so Connor could see her playing.  Connor LOVED it!