Info

Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw

Monday, May 15, 2017

Connor met Ilan Bluestone!!

Connor has such an amazing connection to EDM music of all types.  One of his favorite kinds is Trance and a long time ago he fell in love with a song called Big Ben from Ilan Bluestone.  It started an obsession with the actual Big Ben where we were actually considering going to London for Connor's Make a Wish but thought we should wait.  Connor has even made some Big Bens!

Keely, Big Ben and Connor
When we found out that Ilan Blueston was coming to Boston we knew this would be an amazing experience for Connor if we could make it happen.  We decided to go to dinner before meeting him which is also a treat in itself!

Connor was so excited after eating he was dancing in his seat while waiting for Ilan.  He literally couldn't sit because he was so excited!  All the kids (with some adult help) made a TRANCE sign for Ilan and drew some pictures from his songs:  Cloud Chaser, Spheres, Frozen Ground, Big Ben (of course), a DJ playing, and a Lighthouse.  Ilan signed some photos and gave Connor a CD right from London and signed it!!


Ilan and his management gave each of the kids their own VIP badges too!  Connor and the other kids were in heaven!  Connor has played the CD nonstop since getting it (we had to carefully take off the plastic shrink wrap and laminated it)!





Thank you so much for making Connor's dreams come true!
March 31st, 2017