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Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw

Sunday, January 11, 2015

Blessed Beyond Belief!

This year Christmas was a little different.

Connor at 6
We had started reaching out to our community for help in building Connor's room.  This came about because a few LNA (Licensed Nursing Aide) Agencies had told us carrying a 40 lbs. child up and down our stairs is a liability.  Connor's bedroom is upstairs as well as the tub.  We didn't realize that we would need to look into this so soon--Connor is only 6!  However we decided we should start because we really had no idea how long it would take.  We have been blown away by our community!  So many people have shown interest in "swinging a hammer" on Connor's behalf.

We have had people show up at our door with donations for Christmas, we had food donations so we were able to have a wonderful Christmas feast, and we had close friends organize a collection as their giving back for the season.  We have truly been amazed at the people who have wanted to help.

On top of this, Connor had a wonderful Christmas!  He truly enjoyed it which hasn't always been the case.  This time of year is always financially tight for us so to have some breathing room was incredible.

Around Christmas we also asked for Connor to be nominated for the Ellen Degeneres show for "Nominate a Deserving Person in Need".  So many of you that I emailed nominated Connor (I think about 20 within a few days).  We have yet to hear back from Ellen or her team but I was hoping we might now that it's after the holidays.  But we will see.

Our trouble is getting the materials for building a room.  We are starting again to get estimates on the raw materials and seeing how far we get.  We figure worst case is we just get the "shell," as we call it, done it would be a step in the right direction.  The shell would be the foundation, concrete, wood, siding, windows, garage doors and then worrying about the interior like the handicapped accessibility pieces like a roll in shower, sink, lift (elevator) in some time after we can fundraise longer.


Additionally the principal of Windham High School offered to do the Trans NH Bike Ride in honor of Connor this year.  It's a 3 day ride to benefit the MDA while educating people on what Muscular Dystrophy is. This is the iMovie that the High School played while Mr. Kaplan explained what the ride was about and about Connor.  It was a great experience for Connor to be there and was cheered!

Thank you all from the bottom of our hearts!
Jon and Kira Mullaly

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