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Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw

Monday, September 24, 2018

WE MET MARSHMELLO!

We simply can't believe it!  Marshmello has been a fixture in our house for a long time.  On April 6th we all got to meet him!  He was the nicest guy . . .er . . . Marshmello and made a point to talk to each of the kids.  He asked their names and admired the posters they made and even asked who drew what!  Declan even got to show Marshmello the story he wrote about him in school.  He even let Declan read it to him!  Connor made a birthday card for Marshmello and since white is his favorite color it was a white card.  Declan and Connor asked where Slushii was since they are friends.  He even hugged everyone including the grown ups.

It continues to amaze me that people take the time out of their busy schedules to meet our kids.  Declan asked Marshmello to turn on his helmet also!  Most of all Marshmello was incredibly kind!



And then they got to stay for the concert!  They all LOVED it!  Connor sang along to almost all the songs and even though he was tired and took breaks in the wheelchair, he still kept putting his hands up and dancing around.  Keely is a party animal . . . at 7!  Except when it was midnight and she started crying uncontrollably saying "I don't know why I'm crying!"  Well my darling it's because you are exhausted.  So Mom brought her home a little early.

Marshmello knows how to start a show!!!






Liam really hoped Marshmello would see the signs!
Liam's custom made Marshmello shirt!

Marshmello signed it!

Back of Liam's shirt

Keely asked Marshmello if he showered too and he said yes he was waterproof.  "So the water slides off your head?" Keely asked.  It was such a wonderful time!



Keely created a scene with Marshmello!  She said "This is your family!  I love you a lot!  So much!  There are Marshmello clouds, a girl Marshmello--that's me!  And Marshmello kids!"  She's apparently got plans!  LOL


And thank you so incredibly much @marshmellomusic for meeting the kids!  You were so nice and patient and even listened to Declan’s story!  You are genuine! As a family we’re grateful we can share these moments with Connor. Thank you from the bottom of our hearts!

Declan showing Marshmello his story (and reading it to him).  photo credit @RYANHADJI

Marshmello signing Declan's story.  photo credit @RYANHADJI

photo credit @RYANHADJI

photo credit @RYANHADJI

photo credit @RYANHADJI

4/6/18

10 comments:

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  6. Does anyone still doubt natural herbs? I have seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on English medicine when natural herbs can cure all kinds of mental diseases. I have seen it with my own eyes. My dad and aunt were cured from Huntington disease with Dr Bharet herbal medicine. He used BUJA herbal medicine to cure my dad and aunt from Huntington disease, I know it is hard to believe but am a living testimony. My dad was diagnosed with Huntington's disease in 2016, we have made use of all western medication yet no improvement and his doctors said there is no cure yet but still carrying out research, my dad experienced depression, anxiety and memory lapses that made him hallucinate always, he speaks to himself often and that made me shed tears each night that passes by. 2019 I searched through the internet for a solution and i came across a comment on a blog written by [Robert Jane] saying she was cured of Huntington disease that she suffered from for 8years. Without wasting time I quickly contacted Dr Bharat whose name was mentioned in the comment Via his email. He asked me questions which I answered correctly he sent his herbal medicine to us here in Ireland through DHL, in less than one month I started seeing positive improvement on my Dad's health so I introduced the medication to my aunt as well, is been 4 years now, my dad and aunt are living their best life again. Though i gave the medication as i was instructed. My dad and aunt are Huntington disease negative after the medication, Huntington disease is completely gone from my family lineage. With Bharat herbal medicine called BUJA Huntington patients can smile again. For those with Huntington disease or having their love ones diagnosed with Huntington's disease contact Dr Bharat now via dr.bharatkings@gmail.com you will come back to testify

    ReplyDelete
  7. Does anyone still doubt natural herbs? I have seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on English medicine when natural herbs can cure all kinds of mental diseases. I have seen it with my own eyes. My dad and aunt were cured from Huntington disease with Dr Bharet herbal medicine. He used BUJA herbal medicine to cure my dad and aunt from Huntington disease, I know it is hard to believe but am a living testimony. My dad was diagnosed with Huntington's disease in 2016, we have made use of all western medication yet no improvement and his doctors said there is no cure yet but still carrying out research, my dad experienced depression, anxiety and memory lapses that made him hallucinate always, he speaks to himself often and that made me shed tears each night that passes by. 2019 I searched through the internet for a solution and i came across a comment on a blog written by [George Lisa] saying she was cured of Huntington disease that she suffered from for 8years. Without wasting time I quickly contacted Dr Bharat whose name was mentioned in the comment Via his email. He asked me questions which I answered correctly he sent his herbal medicine to us here in Ireland through DHL, in less than one month I started seeing positive improvement on my Dad's health so I introduced the medication to my aunt as well, is been 4 years now, my dad and aunt are living their best life again. Though i gave the medication as i was instructed. My dad and aunt are Huntington disease negative after the medication, Huntington disease is completely gone from my family lineage. With Bharat herbal medicine called BUJA Huntington patients can smile again. For those with Huntington disease or having their love ones diagnosed with Huntington's disease contact Dr Bharat now via dr.bharatkings@gmail.com you will come back to testify

    ReplyDelete
  8. I want to make this testimony public and as a sign of gratitude to Dr Bharat. On how he saved my husband from Huntington's disease with his herbal medicine called BUJA, i decided to reach out to those still suffering from this disease.
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    ReplyDelete
  9. Hi everyone, this is good news, a perfect and greats one. My daughter of
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    was done says my daughter is Huntington's disease negative. She got cured with Dr Bharat herbal medicine, this is super amazing. My daughter is fully okay and back to her work again. I can boldly say that Huntington's disease is 100% curable with doctor Bharat herbal medicine, is real, anyone with Huntington's disease or have love ones that is suffering from Huntington's disease should contact doctor bharat now on his mail. dr.bharatkings@gmail.com

    ReplyDelete
  10. Read carefully, it's said that Huntington disease has no cure, yes with the western medication but not with herbal medicine, my daughter's situation made me to realize that with doctor Bharat herbal medicine it can be cured.. In 2014 she experienced difficulty in concentrating, memory lapses and depression, at first I thought it was stressed from her place of work until I took her to hospital and the doctor made me to understand that it's juvenile Huntington disease because she is still in her late 20s, which she inherited from my late husband that died of the same disease, the doctor told me it has no cure, but gave her some medicine which I noticed that it has side effects, my daughter situation got worst each day that passes, she was the best at her place of work, now a shadow of her self because of this deadly disease, she speaks to herself often, she was really going insane, I do not want to lose my daughter the same way I lost her father, in 2018 I carried out research on internet and bumped into a comment of a lady that got cured of Huntington disease, without wasting time I contacted doctor Bharat whose name was mentioned in the comment, now is been 3 years my daughter is living her best life again, for those that have the disease or have any love one suffering from Huntington disease, contact doctor Bharat via dr.bharatkings@gmail.com

    ReplyDelete