Join Connor’s Crusaders . . . to help Connor with the battle for his life!
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Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw
We simply can't believe it! Marshmello has been a fixture in our house for a long time. On April 6th we all got to meet him! He was the nicest guy . . .er . . . Marshmello and made a point to talk to each of the kids. He asked their names and admired the posters they made and even asked who drew what! Declan even got to show Marshmello the story he wrote about him in school. He even let Declan read it to him! Connor made a birthday card for Marshmello and since white is his favorite color it was a white card. Declan and Connor asked where Slushii was since they are friends. He even hugged everyone including the grown ups.
It continues to amaze me that people take the time out of their busy schedules to meet our kids. Declan asked Marshmello to turn on his helmet also! Most of all Marshmello was incredibly kind!
And then they got to stay for the concert! They all LOVED it! Connor sang along to almost all the songs and even though he was tired and took breaks in the wheelchair, he still kept putting his hands up and dancing around. Keely is a party animal . . . at 7! Except when it was midnight and she started crying uncontrollably saying "I don't know why I'm crying!" Well my darling it's because you are exhausted. So Mom brought her home a little early.
Marshmello knows how to start a show!!!
Liam really hoped Marshmello would see the signs!
Liam's custom made Marshmello shirt!
Marshmello signed it!
Back of Liam's shirt
Keely asked Marshmello if he showered too and he said yes he was waterproof. "So the water slides off your head?" Keely asked. It was such a wonderful time!
Keely created a scene with Marshmello! She said "This is your family! I love you a lot! So much! There are Marshmello clouds, a girl Marshmello--that's me! And Marshmello kids!" She's apparently got plans! LOL
And thank you so incredibly much @marshmellomusic for meeting the kids! You were so nice and patient and even listened to Declan’s story! You are genuine! As a family we’re grateful we can share these moments with Connor. Thank you from the bottom of our hearts!
Declan showing Marshmello his story (and reading it to him). photo credit @RYANHADJI
