Third Annual Connor's Crusaders Hockey Game

The Third Annual Connor's Crusaders Hockey Game was a success!  First Jon triumphantly blocked quite a few shots at him from his teammates.  The event proved to be a little too much for Connor who decided to take a nap on Kira for the first and second periods.  We think he was just a little overstimulated but no meltdown so that was an absolute plus!  Connor's brother Liam dopped the puck for the second period but Connor dropped the puck for the third period.  Connor was really enjoying himself for the second and third periods.  He just needed that break.  :)

We have to say a huge thank you to all who donated items for the raffles.  And thank you to the DJ Tim Markland and Brian Gonsalves for organizing the event.  Thank you!  Thank you to all the players, referees, and the incredible donations.  All the baskets were just amazing!

We also want to doubly thank all of you for your support for a very difficult time.  Kira getting laid off and loosing the family dog in the same week as the hockey game made for a very very emotional week.  As overwhelming as it was, we know we will make it through.

Connor has a busy schedule coming up as he goes into Kindergarten in the fall.  With all his support people including his school (SAU-28), ABA therapy, Speech, Ocupational Therapy, and Hydrotherapy we are seeing improvements.  It's slow (and painful at times) but he's able to communicate more effectively which helps us feel like all this has GOT to be helping him.

We are understanding more and more about Autism and how to read Connor when he's approaching a difficult point. It's almost like learning another language.

June is Duchenne Muscular Dystrophy awareness month.  We SO VERY much appreciate those of you that chose to post something about Duchenne.  It's such an unknown disease that we feel like it's our job to educate and with education and awareness, more is possible.

To see a video of Connor with the microphone, login to facebook (and be my friend) and you can see it from May 18th:  https://www.facebook.com/#!/photo.php?v=10201292644543924

 

Thank you all from the bottom of our hearts!

Jon, Kira, Liam, Connor, Declan and Keely