Info

Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw

Wednesday, August 24, 2016

Connor saw Martin Garrix's show . . . . and got to meet him!

First I can't believe this happened!  Connor got to see Martin Garrix at the Billboard Hot 100 Music Festival in NY!  He was so excited to go and loved being up past his bedtime.  This what everyone looked like before the concert started.  We got to be in the VIP seating and were so close!


This was his reaction when it was time for Martijn to play (yes I cried several times . . this was one of them):




Connor did get overwhelmed a bit but stuck it out.  He danced to Turn Up the Speakers (I cried):


Connor even let me pick him up to see better (I also cried here too):


Martijn came out and Jon swiftly got Connor out of the stroller to go over to see him (Connor did the thumbs up completely on his own):


Connor even got to ask him what KeyGen means (after he asked where the bathroom was) which he has wondered about for over a year!


It was an incredible show and Martijn did an amazing job as always.  No one could believe how close we were.  Liam, our 10 year old and Keely, our 5 year old REALLY enjoyed themselves (Keely is a party animal and it's a tad concerning at 5).  Declan, our 6 year old sat back and enjoyed:



All the kids LOVED the confetti and the fire and the fireworks.  They thought it was the coolest thing ever:




Connor enjoying the confetti:


Connor just LOVED the concert!  Thank you for making it possible!


These are the shirts we made just in case we were able to see Martijn:



Because Connor is so young it's been hard to find a place where he could actually go and listen to his favorite music live so this was an incredible treat for him!  I asked him the next morning what he thought of the concert and he said "It was awesome!"  Thank you so much Martijn for making Connor's dreams come true!

Here are some more YouTube clips from Connor dancing!  This is Martin Garrix's set:
https://www.youtube.com/watch?v=ogCfYMs2O5k
Connor's awesome moves to Bouncy Bob:
https://www.youtube.com/watch?v=t3V7GsDMF7Q
Connor made a comic for Martin Garrix:
https://www.youtube.com/watch?v=WJBuCHV_Ffo
Connor discovering Turn Up the Speakers:
https://www.youtube.com/watch?v=YTSJtVo-BjQ
When Connor's love of Virus started:
https://www.youtube.com/watch?v=fDxouynUfqA