Join Connor’s Crusaders . . . to help Connor with the battle for his life!
Info
Connor is an amazing 12 year old boy with Duchenne Muscular Dystrophy and Autism. Duchenne will put him in a wheelchair between 10-12 and sometime in his twenties it will claim his precious life. The dreaded clock is ticking and before we know it, Connor will be immobile. Modifications are being made to make our home handicap accessible. To donate via GoFundMe: http://www.gofundme.com/drp2yw
Connor is one lucky EDM kid! And we are super lucky that a LOT of his favorites come to Boston. The latest was W&W!
Willem, Connor and Wardt
Willem and Wardt were super nice answering Connor's questions about favorite food: sushi and Italian (so of course Connor said his favorite was Italian too). They gave him their headphones which Connor absolutely LOVED! He didn't want to take them off when we got home and even wanted to sleep in them.
Connor didn't want to take off the headphones when we arrived home!
After W&W left for their show Connor couldn't wait to try the headphones with their music!
The next day Connor made a Caribbean Rave (one of their songs) for W&W and was super proud he could do the W with his hands!
Thank you so much Willem and Wardt for taking the time to meet Connor!
Connor is one lucky kid! He got to meet Cash Cash (well 2 of 3)! It amazes me every single time this happens!
Sam, Connor and JP!
Connor saw them perform at the AMP Radio Electric Bounce House because they were on right before the Chainsmokers and asked with his famous words "Meet them?" Sigh! Ok Connor . . .let me see what I can do. :) Luckily we were able to make it happen!
Connor watching their sound check!
Sam and JP were super nice to Connor and chatted with him a bit. Connor told them "I Like It Loud" was his favorite song. Anything Connor asked Sam and JP, Connor gave their answer back as his own including favorite color. LOL
Connor got to go on the stage and see the equipment!
Connor was SUPER excited!
Connor LOVED the lights and the inflatables! He was totally obsessed!
And each time this happens we count our blessings because this is a LOVE of his in which we found a connection. Music has helped him so much!
In December we were lucky enough to go back to New York to meet Don Diablo, another favorite EDM artist! It was a challenging trip at times but we had fun!
On our way to New York City! Liam was an incredible helper to Connor on the drive!
Before we left, the kids wanted to make some art for Don. Connor made a skeleton, Liam made Batman, Declan drew Batman and Joker, and Keely colored in some Don Diablo art. When we met him later, he snapchatted their masterpieces!
When we arrived, we ate dinner at the hotel and made Don Diablo symbols with wiki sticks provided by the restaurant. We were so thankful they gave the kids something to do and they had lots of fun making different creations!
The next day we saw the September 11 Memorial Reflecting Pools, Statue of Liberty and Ellis Island! We were so thrilled to see Ellis Island because Connor was doing a unit on it at school and thought he would be able to understand it more having visited it! It was cold and windy though!
This was also our first experience using Uber which awesome honestly!
Connor had a major meltdown from Ellis Island, back to Battery Park. He was saying he was choking and wanted to get off the boat which was pretty packed. He was crying, I was crying, Keely was asking me why I was crying. I told her sometimes Connor's Autism is hard and an incredibly nice couple gave me a tissue and tried to talk to Connor in a wonderful British (I think) accent. He calmed down and they helped me, Keely and Connor off the ferry. I am so incredibly grateful these kind people said something and tried to help. It sincerely restored my faith in humanity.
We told them this was only time it's okay to pick a nose!
Then we got to meet Don Diablo that evening! Connor was so excited and so were all the kids!
Don was super sweet with all the kids, doing face-swapping (Connor's favorite) and snapchatting! Don even mentioned Duchenne Muscular Dystrophy in his snap! It still amazes me! Connor truly loved it! Thank you so much!!
The next day we went to the saw the huge Christmas tree at Rockefeller Center! It was 94 feet high, 56 feet wide and the second tallest ever!
Then we attempted getting into the Lego store. We had no idea how many people would be there but luckily we got in quickly!
Off to my NYC office which was a huge relief for the kids to sit with their Legos and a snack while we checked out the skyline!
We didn't realize Connor's set would take HOURS but Liam helped put it together at the hotel.
We cannot believe this happened! The Chainsmokers were playing in Boston at the AMP103.3 Electric Bounce House at the House of Blues and I took a shot at contacting them to see if they would meet Connor. Selfie has been a long time favorite of his among many of their other songs. I immediately got a (super sweet) reply and Connor was invited to the show! I explained that he's 8 and underage and most places are pretty strict so we'd love if Alex and Drew could meet Connor even if it was at the airport and they told me they would get back to me.
After a little back and forth we had plans and times! We ate close by and Connor kept asking if it was time. He was so excited!
Look at Connor's HUGE smile!
Connor made two cards. A Happy Birthday card for Drew since his birthday was coming up and a card for Alex thanking him for meeting him and letting him come to the show. Connor drew Cheddar (Alex's dog) on the front. They really seemed to love the cards! Little did we know they snapchatted a picture of Connor (and his card)!
Connor got to ask them some questions which included favorite drink. Drew said raspberry iced tea (PG variety). Drew asked Connor what his favorite was and of course Connor said raspberry iced tea. Connor asked a few more questions about favorite school subject but it was obvious Connor was just too excited! He even forgot where he was from. Alex asked if he was from Boston and Connor sorta said yes. Alex tried asking Connor some questions but Connor got a tad shy so we helped a little. He also also kept wanting to sit down in his chair. Connor was VERY excited about the show!
We had brought a bunch of pictures for Connor to choose to ask Alex and Drew to sign and Drew grabbed the stack and said they would sign all of them! Incredible!
Jamie and Connor!
Alex and Drew were so nice to Connor! Connor genuinely LOVED meeting them.
15 minutes before the Chainsmokers! #Selfie
When the Chainsmokers came out! I *think* Connor was excited! (some swearing)
He was dancing the whole night!
And of course don't forget Roses!
Connor also loved that he got to see Cash Cash before the Chainsmokers came out. He loves them too!
